Disease-related social situation in family of children with chronic kidney disease - parents' assessment : a multicentre study

2014
journal article
article
8
dc.abstract.enIntroduction and Objective. Chronic kidney disease (CKD) in children burdens life of patients and their families. Little is known about parents` assessment of families’ social situation. However, the knowledge of the details of a patient’s and his family’s life standards might influence modification and optimization of applied therapy. Therefore, the main goal of the present study was to explore the selected elements of life situation of patients suffering with CKD as well as their parents, depending on the CKD stage and appropriate treatment. Materials and Methods. Cross-sectional national study was conducted. A total of 203 children with CKD and 388 their parent-proxies (196 women and 192 men) were enrolled into this study. Patient data and questionnaires filled by both parents, concerning social-demographic parameters and assessment of changes in families after CKD diagnosis in the child, were analysed. Results. CKD children are being brought up in proper families whose financial situation is not good. Children need help in process of education. Perception of current situation differed between both parents in the change of the income source, taking care of CKD child, change in social relations and evaluating relations with medical staff. Parents do not obtain proper support from social workers. Conclusion. Families of CKD children require support in area of financial and educational help for school children. The discrepancies in evaluation of family situation between mothers and fathers of ill children might be the source of conflicts possibly resulting in worsening the outcome for CKD children.pl
dc.affiliationWydział Lekarski : Instytut Pediatriipl
dc.cm.date2020-01-07
dc.cm.id69940
dc.contributor.authorKiliś-Pstrusińska, Katarzynapl
dc.contributor.authorMedyńska, Annapl
dc.contributor.authorAdamczyk, Piotrpl
dc.contributor.authorBałasz-Chmielewska, Irenapl
dc.contributor.authorGrenda, Ryszardpl
dc.contributor.authorKluska-Jóźwiak, Agnieszkapl
dc.contributor.authorLeszczyńska, Beatapl
dc.contributor.authorOlszak-Szot, Ilonapl
dc.contributor.authorMiklaszewska, Monika - 173942 pl
dc.contributor.authorSzczepańska, Mariapl
dc.contributor.authorTkaczyk, Marcinpl
dc.contributor.authorWasilewska, Annapl
dc.contributor.authorZachwieja, Katarzyna - 133866 pl
dc.contributor.authorZajączkowska, Mariapl
dc.contributor.authorZiółkowska, Helenapl
dc.contributor.authorZagożdżon, Ilonapl
dc.contributor.authorZwolińska, Danutapl
dc.date.accessioned2020-01-17T08:46:08Z
dc.date.available2020-01-17T08:46:08Z
dc.date.issued2014pl
dc.date.openaccess0
dc.description.accesstimew momencie opublikowania
dc.description.number4pl
dc.description.physical876-881pl
dc.description.points10pl
dc.description.versionostateczna wersja wydawcy
dc.description.volume21pl
dc.identifier.doi10.5604/12321966.1129951pl
dc.identifier.eissn1898-2263pl
dc.identifier.issn1232-1966pl
dc.identifier.projectROD UJ / OPpl
dc.identifier.urihttps://ruj.uj.edu.pl/xmlui/handle/item/134703
dc.languageengpl
dc.language.containerengpl
dc.rightsUdzielam licencji. Uznanie autorstwa - Użycie niekomercyjne 3.0 Polska*
dc.rights.licenceCC-BY-NC
dc.rights.urihttp://creativecommons.org/licenses/by-nc/3.0/pl/legalcode*
dc.share.typeotwarte czasopismo
dc.source.integratorfalse
dc.subject.enfamilypl
dc.subject.enchronic kidney diseasepl
dc.subject.enchildren and adolescentspl
dc.subject.ensocioeconomic factorspl
dc.subtypeArticlepl
dc.titleDisease-related social situation in family of children with chronic kidney disease - parents' assessment : a multicentre studypl
dc.title.journalAnnals of Agricultural and Environmental Medicinepl
dc.typeJournalArticlepl
dspace.entity.typePublication
dc.abstract.enpl
Introduction and Objective. Chronic kidney disease (CKD) in children burdens life of patients and their families. Little is known about parents` assessment of families’ social situation. However, the knowledge of the details of a patient’s and his family’s life standards might influence modification and optimization of applied therapy. Therefore, the main goal of the present study was to explore the selected elements of life situation of patients suffering with CKD as well as their parents, depending on the CKD stage and appropriate treatment. Materials and Methods. Cross-sectional national study was conducted. A total of 203 children with CKD and 388 their parent-proxies (196 women and 192 men) were enrolled into this study. Patient data and questionnaires filled by both parents, concerning social-demographic parameters and assessment of changes in families after CKD diagnosis in the child, were analysed. Results. CKD children are being brought up in proper families whose financial situation is not good. Children need help in process of education. Perception of current situation differed between both parents in the change of the income source, taking care of CKD child, change in social relations and evaluating relations with medical staff. Parents do not obtain proper support from social workers. Conclusion. Families of CKD children require support in area of financial and educational help for school children. The discrepancies in evaluation of family situation between mothers and fathers of ill children might be the source of conflicts possibly resulting in worsening the outcome for CKD children.
dc.affiliationpl
Wydział Lekarski : Instytut Pediatrii
dc.cm.date
2020-01-07
dc.cm.id
69940
dc.contributor.authorpl
Kiliś-Pstrusińska, Katarzyna
dc.contributor.authorpl
Medyńska, Anna
dc.contributor.authorpl
Adamczyk, Piotr
dc.contributor.authorpl
Bałasz-Chmielewska, Irena
dc.contributor.authorpl
Grenda, Ryszard
dc.contributor.authorpl
Kluska-Jóźwiak, Agnieszka
dc.contributor.authorpl
Leszczyńska, Beata
dc.contributor.authorpl
Olszak-Szot, Ilona
dc.contributor.authorpl
Miklaszewska, Monika - 173942
dc.contributor.authorpl
Szczepańska, Maria
dc.contributor.authorpl
Tkaczyk, Marcin
dc.contributor.authorpl
Wasilewska, Anna
dc.contributor.authorpl
Zachwieja, Katarzyna - 133866
dc.contributor.authorpl
Zajączkowska, Maria
dc.contributor.authorpl
Ziółkowska, Helena
dc.contributor.authorpl
Zagożdżon, Ilona
dc.contributor.authorpl
Zwolińska, Danuta
dc.date.accessioned
2020-01-17T08:46:08Z
dc.date.available
2020-01-17T08:46:08Z
dc.date.issuedpl
2014
dc.date.openaccess
0
dc.description.accesstime
w momencie opublikowania
dc.description.numberpl
4
dc.description.physicalpl
876-881
dc.description.pointspl
10
dc.description.version
ostateczna wersja wydawcy
dc.description.volumepl
21
dc.identifier.doipl
10.5604/12321966.1129951
dc.identifier.eissnpl
1898-2263
dc.identifier.issnpl
1232-1966
dc.identifier.projectpl
ROD UJ / OP
dc.identifier.uri
https://ruj.uj.edu.pl/xmlui/handle/item/134703
dc.languagepl
eng
dc.language.containerpl
eng
dc.rights*
Udzielam licencji. Uznanie autorstwa - Użycie niekomercyjne 3.0 Polska
dc.rights.licence
CC-BY-NC
dc.rights.uri*
http://creativecommons.org/licenses/by-nc/3.0/pl/legalcode
dc.share.type
otwarte czasopismo
dc.source.integrator
false
dc.subject.enpl
family
dc.subject.enpl
chronic kidney disease
dc.subject.enpl
children and adolescents
dc.subject.enpl
socioeconomic factors
dc.subtypepl
Article
dc.titlepl
Disease-related social situation in family of children with chronic kidney disease - parents' assessment : a multicentre study
dc.title.journalpl
Annals of Agricultural and Environmental Medicine
dc.typepl
JournalArticle
dspace.entity.type
Publication
Affiliations

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